 |
| My first-born daughter, Isabella, was diagnosed with a rare genetic condition called Trisomy 18, also known as Edward's Syndrome. Allowing her to write her own story has been the greatest honor of my life. |
By Missy Enaje
Where do I begin? I am releasing a book I dedicated to my daughter, Isabella. I completed the book before she was born and wrote it in honor of her. I also discussed the rare genetic condition she had called Trisomy 18, which affects the development and viability of a child. While no cure currently exists, medical interventions have proven to extend the child's life at the risk of the child's quality of life. There is no middle ground: it's one hard decision vs. another hard decision.
